Washington State Neurofibromatosis Families http://www.wsnfsupport.org/wp Thu, 18 Aug 2011 01:38:34 +0000 en hourly 1 http://wordpress.org/?v=3.3.1 Ask the Doc Medical Symposium http://www.wsnfsupport.org/wp/2011/08/ask-the-doc-medical-symposium/ http://www.wsnfsupport.org/wp/2011/08/ask-the-doc-medical-symposium/#comments Wed, 17 Aug 2011 20:08:54 +0000 admin http://www.wsnfsupport.org/wp/?p=296 Join us for a November 19, 2011 for our NF Ask the Doc Medical Symposium. Learn about the latest NF research and network with others in the NF community. The price is complementary and no RSVP is required, but you may want to come early to get a good seat – the room fills up fast!

When: Saturday, November 19, 2011

Coffee and registration at 8:15AM
Symposium begins at 9:00am
Light lunch provided at noon

Where: Seattle Children’s Hospital

Hospital Cafeteria on the 5th Floor
4800 Sand Point Way NE
Seattle, Washington

Program:

9:00- 9:20am Greeting and Update from WSNF
Cheri Stewart, WSNF Board President

9:20- 10:20am  Eye findings in NF1 and NF2
Avery Weiss, M.D.
Pediatric Ophthalmologist, Seattle Children’s Hospital
Professor, University of Washington

10:20- 10:40am Break

Coffee and Refreshments will be provided.

10:40- 11:10am SPRED1/Legius syndrome

(Tentatively Virginia Sybert, M.D.
Medical Geneticist and Dermatologist Professor, University of Washington Group Health Cooperative, Seattle , WA )

11:10- 12:00pm Panel Discussion Q&A

An opportunity for families and providers to ask questions about issues that affect adults and children with NF. The panel is composed of family members and providers.

12:00- 1:00pm Light lunch

Get to know other members of the NF Community!

]]> http://www.wsnfsupport.org/wp/2011/08/ask-the-doc-medical-symposium/feed/ 0 2011 Walk / Run 5k Challenge http://www.wsnfsupport.org/wp/2011/03/2011-walk-run-5k-challenge/ http://www.wsnfsupport.org/wp/2011/03/2011-walk-run-5k-challenge/#comments Tue, 15 Mar 2011 15:09:34 +0000 admin http://www.wsnfsupport.org/wp/?p=179 Walk / RunPlease Join Us!
Sunday, June 5th @ King County’s Marymoor Park in Redmond, WA

]]> http://www.wsnfsupport.org/wp/2011/03/2011-walk-run-5k-challenge/feed/ 0 NF Annual Golf Tournament – July 18th http://www.wsnfsupport.org/wp/2011/03/nf-annual-golf-tournament/ http://www.wsnfsupport.org/wp/2011/03/nf-annual-golf-tournament/#comments Fri, 04 Mar 2011 06:46:53 +0000 admin http://www.wsnfsupport.org/wp/?p=162 Join us for a great day on the course at the Annual NF Golf Tournament!

When: July 18, 2011
Registration, lunch & pitch & put Contest at noon
Shot gun start @ 1:00 pm
Hole in one contest following the tournament with the buffet dinner & awards.

Where: Druid’s Glen Golf Club (map)
29925 207th Avenue Southeast
Kent, WA 98042-5906
druidsglengolf.com‎

Price: $75.00

Online Registration is coming soon.

]]> http://www.wsnfsupport.org/wp/2011/03/nf-annual-golf-tournament/feed/ 0 Mariners Tickets 2011 http://www.wsnfsupport.org/wp/2011/03/mariners-tickets-2011/ http://www.wsnfsupport.org/wp/2011/03/mariners-tickets-2011/#comments Fri, 04 Mar 2011 06:40:39 +0000 admin http://www.wsnfsupport.org/wp/?p=159 The tickets are in! The Mariners have VERY GENEROUSLY donated 50-75 tickets for the Sept 1st, Thursday, 7:00PM game at Safeco field.

Seattle MarinersIf you are interested in tickets, please contact Cheri Stewart at csvitfocus@aol.com with the following information:

  • Full name
  • Full mailing address (with zip code)
  • Number of tickets you are requesting (max. 4 tickets)

Tickets are distributed on a first come, first serve basis.

Go M’s!

]]> http://www.wsnfsupport.org/wp/2011/03/mariners-tickets-2011/feed/ 0 Welcome to WSNF http://www.wsnfsupport.org/wp/2011/03/welcome-to-wsnf/ http://www.wsnfsupport.org/wp/2011/03/welcome-to-wsnf/#comments Fri, 04 Mar 2011 05:48:26 +0000 admin http://www.wsnfsupport.org/wp/?p=147 If you have Neurofibromatosis (NF), know someone who does, or are looking for information regarding NF… you have come to the right place! You are not alone. Facing a new diagnosis of NF, living with NF, or loving someone affected with this disorder, creates a multitude of feelings, concerns, and questions that only another with NF in their lives understands.

]]> http://www.wsnfsupport.org/wp/2011/03/welcome-to-wsnf/feed/ 4 Hello world! http://www.wsnfsupport.org/wp/2010/09/hello-world/ http://www.wsnfsupport.org/wp/2010/09/hello-world/#comments Fri, 17 Sep 2010 05:11:10 +0000 admin http:/?p=1 Welcome to WordPress. This is your first post. Edit or delete it, then start blogging!

]]> http://www.wsnfsupport.org/wp/2010/09/hello-world/feed/ 0