If you have Neurofibromatosis (NF), know someone who does, or are looking for information regarding NF… you have come to the right place! You are not alone. Facing a new diagnosis of NF, living with NF, or loving someone affected with this disorder, creates a multitude of feelings, concerns, and questions that only another with NF in their lives understands.
WSNF on Facebook- UntitledDino Doozer Masquerade Ballwww.ticketriver.comThis years Dino Doozer Masquerade Ball will be held at the Cowlitz County Expo Center - located at 1900 7th Ave in Longview Washington […]
- If you want Buddy to come and visit you, click on the link to register! If Buddy...If you want Buddy to come and visit you, click on the link to register! If Buddy does come to visit you, send us some pictures!Event Gallerywww.nfcalifornia.org NF Buddies Around the World Register NOW if you would like Buddy to come visit you. (This is a generic registration, please put 1 in the attendee box) We Will get back to you by email. Hi! My name is […]
- UntitledBeauty Mark Nation | United to cure NeurofibromatosisBeauty Mark Nation | United to cure Neurofibrombeautymarknation.orgThe Beauty Mark Nation imagines a world without neurofibromatosis (NF) and is boldly leading the way to find the cure. They will bring NF out of obscurity and into the public’s consciousness. […]
- Great symposium today! Thank you Cheri and WSNF for sponsoring the event and all...Great symposium today! Thank you Cheri and WSNF for sponsoring the event and all the preparation that went into making it a successful event. Thank you Dr. Weiss and Dr. Sybert for the wealth of information and for the families that shared their stories! Hope you can join us in 2012! […]
- Untitled
Other Ways to Get Involved
Beauty Mark Nation
Doodle Day USA
Run4NF
Soon our niece, who has NF, will be coming to live with us. We really have very little information about this condition, so are looking for any ionformation we can find. We are also trying to find medical specialists located close to us in Oregon. I am not sure if this is the place to contact you, but are hoping for any information you can provide.
I have neurofibromatosis and I am 55 years old and i have had this all my life i would like verry much some help on this matter ploease.
i’m at [deleted for security]
thyank you from Cecil L, Gonzales
Thanks for getting in touch with us. Someone will be contacting you soon!
January 03 / 2012
Greetings.
From Venezuela, NF1 am patient, I can testify to this padeciemiento relationship, so that you can lead a normal life, with certain restrictions. Everything is in fitness for life, that everyone takes.
A hug.
pardon my English …
Thanks for your attention
goodbye to you.
Lord. Salomon Delgado B
Contact Phone: 58-426-9540869
Email: salomon.ddv @ gmail.com