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News and Research

NF1 Research Opportunity -
ARE YOU INTERESTED IN NF1 RESEARCH?
If so, there is a four year study of children's spines that might interest you. The study is taking place in Utah, Cincinnati, England, and Vancouver (Canada). Bone health problems are common in both children and adults with NF1. Up to one-third of children with NF1 may have spine problems that can result in scoliosis. Early detection and early therapy may play a role in successful prevention or treatment.
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