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Welcome
If you have Neurofibromatosis (NF), know someone who does, or are looking for information regarding NF... you have come to the right place! You are not alone. Facing a new diagnosis of NF, living with NF, or loving someone affected with this disorder, creates a multitude of feelings, concerns, and questions that only another with NF in their lives understands.
For more ways to get involved, see the NF Activities page.
| Research Opportunities |
NF1 Research Opportunity
ARE YOU INTERESTED IN NF1 RESEARCH?
If so, there is a four year study of children's spines that might interest
you. The study is taking place in Utah, Cincinnati, England, and
Vancouver (Canada). Bone health problems are common in both children and
adults with NF1. Up to one-third of children with NF1 may have spine
problems that can result in scoliosis. Early detection and early therapy
may play a role in successful prevention or treatment.
[more information]
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(425) 672-9610
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