NF Activities

The following is a list of opportunities for you to support or participate in events that support WSNF. We hope you will be inspired to take action with us!

Neurofibromatosis Symposium - Learn about NF, hear about the ongoing research studies, have your questions answered by leaders in the NF field and get to know other members of the NF community.

NF1 Research Opportunity - ARE YOU INTERESTED IN NF1 RESEARCH?
If so, there is a four year study of children's spines that might interest you. The study is taking place in Utah, Cincinnati, England, and Vancouver (Canada). Bone health problems are common in both children and adults with NF1. Up to one-third of children with NF1 may have spine problems that can result in scoliosis. Early detection and early therapy may play a role in successful prevention or treatment.

Meet and Greet for Parents and Children with NF1

Free Mariners Tickets for 2008

Run4nf.org - Be Strong. Make a difference. Run... walk... cheer... support.

Run4NF is a national fundraising organization whose mission is to create a team of people who through personal challenges will boost NF public awareness as they fundraise for NF. Run4NF welcomes all willing to make a difference regardless of their athletic abilities. No matter how long it takes to finish a challenge Run4Nfers are all winners for taking their first step across the start line.