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Welcome

If you have Neurofibromatosis (NF), know someone who does, or are looking for information regarding NF... you have come to the right place! You are not alone. Facing a new diagnosis of NF, living with NF, or loving someone affected with this disorder, creates a multitude of feelings, concerns, and questions that only another with NF in their lives understands.

For more ways to get involved, see the NF Activities page.

2009 GOLF TOURNAMENT REGISTRATION

THANK YOU

We have been blessed by the support of so many individuals and corporations. Your generosity heals hearts and promises a healing tomorrow. Although there is nothing we could say that could truly express the hope your support offers, we would nonetheless like to recognize some of our top donors here.

A Very Special Thank You To:

Nintendo Callison
A private, anonymous donor by way of Steve Finley Boeing Employees
The Silesky Family Marsh
Gunsul Clark Iverson United Way
Miyamoto Family Mariners
Stoetzer Family Evergreen Ford

As you know, all money raised by WSNF goes back into the NF community by way of NF camp, school scholarships for young adults with NF, NF medical symposiums, travel fund for patients, and NF education and awareness. In addition to our programs, WSNF also works the front lines as a strong catalyst for imperative NF research. When you donate to WSNF, you are investing in our community... investing in people... investing in hope.

Thank you.


Research Opportunities

NF1 Research Opportunity

ARE YOU INTERESTED IN NF1 RESEARCH?

If so, there is a four year study of children's spines that might interest you. The study is taking place in Utah, Cincinnati, England, and Vancouver (Canada). Bone health problems are common in both children and adults with NF1. Up to one-third of children with NF1 may have spine problems that can result in scoliosis. Early detection and early therapy may play a role in successful prevention or treatment.
[more information]

 

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