Welcome
If you have Neurofibromatosis (NF), know someone who does, or are looking for information regarding NF... you have come to the right place! You are not alone. Facing a new diagnosis of NF, living with NF, or loving someone affected with this disorder, creates a multitude of feelings, concerns, and questions that only another with NF in their lives understands.
For more ways to get involved, see the NF Activities page.
| Chili 'n' Chat NF Meeting - No Charge |
Dear friends and families,
For too long we've been in need of an NF meeting. Set aside a little time for a great afternoon. There is nothing more helpful than spending time with others who understand our concerns and share our questions. And the chili is terrific!! :-) We will try to arrange for an NF aware doctor or genetic counselor to join us as well.
Date: Saturday, October 17th
Time: 1:00 PM - 3PM
Place: Gemalee Morrison's home -- WSNF's Secretary
Address: 626 NW 182nd Street, Shoreline, WA
Driving Directions
Cheri Stewart, WSNF President
425-672-9610
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| THANK YOU |
We have been blessed by the support of so many individuals and corporations. Your generosity heals hearts and promises a healing tomorrow. Although there is nothing we could say that could truly express the hope your support offers, we would nonetheless like to recognize some of our top donors here.
A Very Special Thank You To:
| Nintendo |
Callison |
| A private, anonymous donor by way of Steve Finley |
Boeing Employees |
| The Silesky Family |
Marsh |
| Gunsul Clark Iverson |
United Way |
| Miyamoto Family |
Mariners |
| Stoetzer Family |
Evergreen Ford |
As you know, all money raised by WSNF goes back into the NF community by way of NF camp, school scholarships for young adults with NF, NF medical symposiums, travel fund for patients, and NF education and awareness. In addition to our programs, WSNF also works the front lines as a strong catalyst for imperative NF research. When you donate to WSNF, you are investing in our community... investing in people... investing in hope.
Thank you. |
| Research Opportunities |
NF1 Research Opportunity
ARE YOU INTERESTED IN NF1 RESEARCH?
If so, there is a four year study of children's spines that might interest
you. The study is taking place in Utah, Cincinnati, England, and
Vancouver (Canada). Bone health problems are common in both children and
adults with NF1. Up to one-third of children with NF1 may have spine
problems that can result in scoliosis. Early detection and early therapy
may play a role in successful prevention or treatment.
[more information]
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